Children needing your sponsorship

Here, with their parents consent, we spotlight the children waiting to be sponsored.  

If you would like to sponsor a child please email to check they haven't already been sponsored but not yet removed from this page and then please complete the contact form below.

Arin

CHD

SPONSORED BY AN ANONYMOUS DONOR.

THANK YOU SO MUCH

POPPY

CHD

SPONSORED BY TERRY FARRELL

 

THANK YOU SO MUCH

LEAH

CHD

SPONSORED.

 

THANK YOU SO MUCH

FINLAY

CHD

SPONSORED

 

THANK YOU SO MUCH

VINCENT

CHD

This is our little super human Vincent, he is 11 weeks old. He had surgery at 12 days old to repair coarctation of the aorta.
He is being reviewed again in 3 months as his most recent review still showed some narrowing.
He also has a rare metabolic condition called MCADD - this means he is unable to draw on his fat supplies for energy, and therefore throughout his life could get very poorly very quickly if not treated promptly.
He amazes us daily with how strong he is and amongst all that he's been through still manages to give the most wonderful smiles.
We would love for him to be sponsored for a teddy so it can provide a little bit of extra comfort for him during his future appointments and hospital stays .... We're sure he would love one just as much as we love him.

LEO

CHD

UPDATE:

 

SPONSORED BY LEONA FENTON.

 

THANK YOU SO MUCH

CALEB

CHD

Here is Caleb's journey so far.......

Caleb was diagnosed with a Hypoplastic Left Heary syndrome at 20 week scan. I Was offered a termination but turned it down. I was induced at 39 weeks at the rvi and gave birth and he weighed 7lb 10oz. Caleb was then later transferred to the freeman hospital we he was to receive his treatment.
At 4 days old he went for the first part of his open heart surgery which was the norwood. He had more heart surgeries to try and help him along while a solution was worked on. Due to the pressures in his heart not being right it was looking less and less likely that a second stage operation (the glen) was an option so a transplant was looking like the best option. Which he had on the 10th May 2016

He surprised us and doctors and surgeons every time with the fight he had in him and always managed a big smile. Caleb is truly our little braveheart so proud of his fight and courage everyday he is our heart hero.

ENYA

CHD

UPDATE:

 

SPONSORED BY KEELY JAMES

 

THANK YOU SO MUCH

WILLIAM

CHD

SPONSORED

 

THANK YOU SO MUCH

RYAN

ANGEL

SPONSORED BY SUE HINDHAUGH

 

THANK YOU SO MUCH

HARRY

CHD

KYLE

CHD

SPONSORED

 

THANK YOU SO MUCH

ROBBIE

CHD

SPONSORED BY TERRY FARRELL

 

 

THANK YOU SO MUCH

KERR

CHD

SPONSORED

 

THANK YOU SO MUCH

IZABELLA

CHD

SPONSORED BY ALEXANDER NICOLL

 

THANK YOU SO MUCH

ELENA

CHD

UPDATE

 

SPONSORED BY AIMEE ROBERTS

 

THANK YOU SO MUCH

KACY

CHD

SPONSORED

 

THANK YOU SO MUCH

EMILY

DiGeorge

SPONSORED

 

THANK YOU SO MUCH

CODY

CHD


This is Cody, he was diagnosed at my 20 week scan that he had hypo plastic left heart syndrome

I got referred straight to a consultant who confirmed his diagnosis

I got offered severel terminations which I turned down every time

He was born in Oxford by emergency c section at 39+4 due to being breech. From there he got taken straight to scbu where he was kept stable util he got transferred at 4 days old to great Ormond street where he had his first operation at a week old.

After surgery he had issues keeping his oxygen levels up. While they tried to figure out the cause, he had a cardiac arrest and ended up going down to cardiac intensive care for 3 days where he then got sent back up to the ward waiting on his second procedure a cardiac catheter due to narrowing in the shunt he had put in they put in a stent to keep it open.

After that procedure he was doing great.

He got to finally come home at 2 months old.

He had regular scans and regular care nurse visits, dietician, speech and language therapy, due to being on a ng tube and not wanting to take his bottle.

Cody then had his second operation, the glenn, at 6 months old as they knew how tired he was getting and by his colour and breathing that he was ready and that he had outgrown the first shunt after the second operation he stayed in intensive care for a while due to low oxygen levels. They tried blood transfusions and that still didn't help.

Then after further tests told us how he has pulmonary hypertension and he also had adneo virus. He stayed on oxygen for a good 3 and a half weeks and they kept trying to wean it off . He then totally came off oxygen and didn't need it. He could keep his oxygen levels up by himself and was ready for discharge after a month of being a inpatient

Cody still haS regular checkups  and they've left a bit more of a time gap between checkups. but still keep a very close eye on him.

Cody is now 17 months old. He's a very happy boy and has been off his ng tube for 6 months and gaining weight and growing very well

Cody is currently awaiting his 3rd operation which is anytime between now and school age .

Cody is our very own hero x

CRAIG

CHD


Craig was less than 24 hours old when we got told of Craig’s heart condition. As new parents our minds were all over the place and he had surgery on the Friday, Craig was less than 48 hours old.

Craig was diagnosed with Total Anomalous Pulmonary Venous Connection, we can’t thank the team of surgeons enough for everything they have done for Craig.

Craig spent 6 weeks in hospital, 4 weeks in PICU and then onto a ward before being discharged home. We still return to the Royal Hospital for Sick Children in Glasgow for routine appointments. Craig is now over 7 months and he’s thriving. Next step will be in June when hopefully we can stop his only medication.

Thank you in advance to anyone who sponsors us to allow Craig to get a beautiful bear. It will mean a lot to us.

OLLIE

CHD

SPONSORED BY SAMANTHA JOHNSTON, ALEXANDER NICOL & OSCAR

 

THANK YOU SO MUCH

KAI

CHD

At our 20 week scan kai was disnaosed with hypoplasic left heart, double outlet right ventricle and his aorta was not developed.
At 10.10 am on the 21st of April 2017 Kai was born at the royal Victoria hospital in Belfast ( 65 miles from home )
Within 24 hrs we where transferred by private jet to Birmingham children's hospital where at 8 days old kai had his first stage
surgery (noorwood)
After a very long 3 weeks away from home on the 8th May 2017 we where finally able to bring our baby home to meet his brothers
?
Kai is the strongest person I know he has came through so much in the last 8 months/ He has smiled his way through it all, he is such a happy baby and brings so much love to everyone we are totally blessed,
Surrently Kai has had his second stage surgery (the Glen shunt) in September 2017 and is doing great,

Some people never meet there hero's,

I gave birth to mine
 

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